Hailey's Hope Foundation

Supporting Families in the NICU



MyPreemie  (available for iPhone and iPad; $4.99 on iTunes)

A great resource for families of premature babies in the NICU.  This app comes from the same team (two mothers of premature babies and a neonatologist) who wrote the highly praised book Preemies: The Essential Guide for Parent of Premature Babies.  Its features include A Pocket Guide to Preemies, A Remember to Ask List, A Remember to Do List, A Diary, A Trackers section, and a Treasured Mementos section.

Learn more about the MyPreemie App on iTunes at https://itunes.apple.com/us/app/mypreemie/id620128292?mt=8


From Hope To JoyFrom Hope to Joy: A Memoir of a Mother’s Determination and Her Micro Preemie’s Struggle to Beat the Odds (August 2013)

By Jennifer Degl (Teacher and former NICU parent)

Jennifer Degl brings her readers on an emotional roller coaster: from the decision to get pregnant despite warnings from her doctors—and nearly dying four times during her pregnancy—to the birth of her daughter, Joy, seventeen weeks early, and this tiny baby’s fight to survive.  The Degl family’s journey sheds light on the many challenges families face  with a life-threatening pregnancy and birth, the hospitalization of an extremely premature newborn in the NICU, and the struggle to maintain normalcy for siblings at home.  It is a riveting story to which many NICU parents can relate, especially parents of micropreemies.

Available on Amazon.com®:  http://www.amazon.com/From-Hope-Joy-Determination-Preemies/dp/061584443X

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Preemies Essential Guide 2nd editionPreemies – Second Edition: The Essential Guide for Parents of Premature Babies (November 2010)

By Dana Wechsler Linden, Emma Trenti Paroli (two moms of preemies) and Mia Wechsler Doron, M.D. (neonatologist)

A great parent reference resource, which has been updated from their 2000 edition to reflect advances in neonatology.  Authors Dana Wechsler Linden and Emma Trenti Paroli are parents who have “been there.” Together with neonatologist Mia Wechsler Doron, M.D., they answer the dozens of questions that parents will have at every stage—from high-risk pregnancy through preemie hospitalization, to homecoming and the preschool years.

Available on Amazon.com®:  http://www.amazon.com/Preemies-Edition-Essential-Parents-Premature-ebook/dp/B00APJ7KXG

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Living MiraclesLiving Miracles:  Stories of Hope from Parents of Premature Babies (April 2000)

By Kimberly A. Powell and Kim Wilson (Editors) and foreword by Jeffrey Thompson, M.D.

Twenty-two engrossing stories of babies born prematurely, written by their parents.  In painstaking and heartfelt detail, these parents share their fears, their joys, the stories of where they turned for help, their tips, and most importantly, their triumphs.

Available on Amazon.com®:  http://www.amazon.com/Living-Miracles-Stories-Parents-Premature/dp/0312245505

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For Those Who Hold The Littlest HandsFor Those Who Hold the Littlest Hands

By Kirsti A. Dyer (Physician, Health Educator, Professor, Author and former NICU mom)

Information and support for parents of babies in the NICU.  Please visit Dr. Dyer’s website to download this FREE ebook.

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51itc1bhrFL._SY300_Newborn Intensive Care:  Third Edition: What Every Parent Needs to Know (October 2009)

By American Academy of Pediatrics (Author) and Jeanette Zaichkin, RN, MN, NNP-BC (Editor-in-Chief)

Significantly revised and updated, the new third edition of the best-selling Newborn Intensive Care: What Every Parent Needs to Know is a great resource for any parent with a premature infant.  The book covers everything from how to overcome barriers to NICU parenting to how to prepare for and nurture your NICU graduate at home.

Available on Amazon.com®:  http://www.amazon.com/Newborn-Intensive-Care-Parent-Zaichkin/dp/1581103077/ref=sr_1_1?s=books&ie=UTF8&qid=1382553949&sr=1-1&keywords=Newborn+Intensive+Care

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